Well, looking back at my last post, it seems I was in quite a dark place when I last wrote.
The last couple of weeks have been filled with busi-ness. The health visitor managed to get round here to see Son no. 2 and 3, and she's applying for some nursery funding for Son no. 3 to go to nursery for 10 hours a week, which will be great if we can get it, but we probably won't.
I've also started my pacing 'treatment' with the ME clinic. It essentially consists of keeping a diary of whether I'm active, resting or asleep, and to start to fit in four half hour 'rest' periods throughout the day. Really easy with a toddler, a baby, a child, a teenager, and a working stressed out husband in the house! I've managed it twice. Yes, that's two half hour sessions, not two days worth! Still, I shall keep plugging away at it.
The supplements seem to be helping me stay awake during the day, so I'm continuing with them.
What was frustrating though was seeing the Neurologist this week - he's giving me an MRI, and asking my GP to put me on some different drugs (yeay - I think!) but is pretty convinced there won't be anything on the MRI, and so in that case, wants to send me to Psychiatry.
I do feel like sending him a full copy of What is ME? What is CFS? highlighting the symptoms I have, (which is everything bar seizures,) and asking him to provide me with equally convincing evidence that 'Fibromyalgia' has a psychiatric cause, but I fear that would be seen as me being belligerent. So, I'm resigned to allowing the professional to do his stuff, and then, perhaps I might attempt to argue that maybe immunology might be the next step before we resort to Psychiatry. But we'll see - I may just try and take Psychiatry on single handedly, because I don't think they'll find what they need there!